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    Clinical Outcome Assessments

    What are Clinical Outcome Assessments (COAs)? What do they measure?

    Learn more about COAs
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    The most trusted distributor of COAs

    700+ exclusive COA distributions on behalf of their copyright owners

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    PROQOLID™: the largest COA database

    7,000+ COAs described in details and accessible in this unique database

  • Services
    Services

    Mapi Research Trust provides turnkey solutions for your Clinical Outcome Assessments (COAs) strategies - including COA databases, targeted literature reviews, licensing.

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    COA Databases Patient-Centered Endpoint Intelligence COA Licensing Translation and Linguistic Validation eCOA Licensing COA Repository
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    About ePROVIDE™

    Online access to all our services and COA databases

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    What are eBooklets?

    Find out more about this step-by-step guidance for valid digitization of COAs

  • Author Collaboration
    Author Collaboration

    Our team is dedicated to assisting authors in the daily management of their questionnaires and all derivatives, including translations and electronic versions

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    COA distribution COA copyright and protection Promotion of COAs and developers Testimonials
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    Catalog of COAs distributed by Mapi Research Trust

    800+ exclusive distributions of COAs, accessible in ePROVIDE

  • Resources
    Resources

    ACCESS all our resources on COAs and eCOA: webinars, publications, blogs. SUBSCRIBE to receive email updates.

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    Blog Publications Useful links Webinar recordings Whitepapers
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    New whitepaper

    Digitizing COAs: A streamlined approach to approval

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    New whitepaper

    COAs and copyright: How to mitigate risks of infringement and misuse in clinical research and practice

  • News & Events
    News & Events

    Stay informed with our latest news and check all our upcoming events. SUBSCRIBE to get email updates.

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  • About us
    About us

    Mapi Research Trust is a non-profit organization dedicated to improving patients’ quality of life by facilitating access to Clinical Outcome Assessments(COAs).

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    Team

    A global team of multi-disciplinary experts

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    Experience

    Collecting & Processing Patient Centered Outcomes information for more than two decades

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  4. Gynecology

Gynecology

Articles

  • 2018. Colombo N et al. – Evaluation of a Streamlined Oncologist-Led BRCA Mutation Testing and Counseling Model for Patients With Ovarian Cancer
  • 2017. Rosen VM et al – Systematic Review and Network Meta-Analysis of Bevacizumab Plus First-Line Topotecan-Paclitaxel or Cisplatin-Paclitaxel Versus Non-Bevacizumab-Containing Therapies in Persistent, Recurrent, or Metastatic Cervical Cancer
  • 2017. Zanotti G et al. – Treatment patterns and real world clinical outcomes in ER+/HER2- post-menopausal metastatic breast cancer patients in the United States
  • 2014. Panagiotopoulou N et al. – Uterine-sparing minimally invasive interventions in women with uterine fibroids: A systematic review and indirect treatment comparison meta-analysis
  • 2014. Cope S et al. – A process for assessing the feasibility of a network meta-analysis: A case study of everolimus in combination with hormonal therapy versus chemotherapy for advanced breast cancer
  • 2012. Landfeldt E et al. – Patient preferences for characteristics differentiating ovarian stimulation treatments
  • 2008. Roux C et al. – Inverse relationship between vertebral fractures and spine osteoarthritis in postmenopausal women with osteoporosis
  • 2005. Zöllner YF et al. – Literature review of instruments to assess health-related quality of life during and after menopause

Posters & Presentations

  • 2018. SRI Annual Meeting – Quality of Life and Burden of Uterine Fibroids: Results from the First 200 Women Enrolled in a U.S. Real-World Study
  • 2017. ASCO Annual Meeting – ENGAGE: Evaluation of a streamlined oncologist-led BRCA mutation (BRCAm) testing and counselling model for patients with ovarian cancer
  • 2016. ISPOR European Congress – Health State Utilities for Persistent, Recurrent or Metastatic Cervical Cancer in France
  • 2016. ESMO – Evaluating a Novel Oncologist-led BRCA1/2 Mutation (BRCAm) Testing and Counseling Model for Patients with Ovarian cancer: Interim Results from the ENGAGE (NCT02406235) study
  • 2016. EUROGIN – Estimating the Management Cost of Cervical Intraepithelial Neoplasia in the UK
  • 2016. ISPOR Annual International Meeting – Treatment and Patient Burden in ER+/ HER2-Metastatic Breast Cancer: Results from a Physician Survey in the United States
  • 2016. ISPOR Annual International Meeting – Clinical Characteristics, Treatment Patterns and Health Care Utilization in ER+/HER2- Metastatic Postmenopausal Breast Cancer Patients: Results from a Retrospective Medical Record Review in the United States
  • 2016. International Symposium on Hereditary Breast and Ovarian Cancer – Evaluating a Novel Oncologist-led BRCA Genetic Testing Counseling Model for Ovarian Cancer Patients: Interim Results from the ENGAGE Study
  • 2015. ISPOR European Congress – Patient Characteristics and Disease Burden of Osteoporosis in Post-Menopausal Women at Risk of Fracture in Germany
  • 2013. San Antonio Breast Cancer Symposium – Comparative efficacy of everolimus and exemestane versus chemotherapy for advanced breast cancer in terms of progression-free survival
  • 2013. ISPOR European Congress – Uterine-Sparing Surgical Treatment Modalities in Women with Uterine Fibroids: A Systematic Review and Indirect Treatment Comparison
  • 2012. ECCEO-IOF European Congress – Indirect comparison of bazedoxifene vs. oral bisphophonates for the prevention of nonvertebral fractures in high-risk post-menopausal osteoporosis population
  • 2011. ISPOR European Congress – How Do Postmenopausal Women Describe Breast Pain and Breakthrough Bleeding Associated with Hormonal Treatments for Menopausal Symptoms: Qualitative Interviews with Postmenopausal Women in the United States, China, Mexico and Italy.
  • 2009. ISPOR European Congress – Item Reduction and Validation of a New Adherence Questionnaire in Osteoporotic Post-Menopausal Women: The Adherence Evaluation of Osteoporosis Treatment (ADEOS) Questionnaire
  • 2009. ISPOR European Congress – Symptoms and Impact of Premenstrual Dysphoric Disorder (PMDD). Concepts and Measurement
  • 2006. ISPOR European Congress – Cost-Effectiveness of Fulvestrant as an Additional Endocrine Step in the Treatment Sequence for Hormone Responsive Advanced Breast Cancer
  • 2006. ISPOR European Congress – Linguistic Validation of the Menstrual Distress Questionnaire (MDQ) in an International Study for a New Combined Oral Contraceptive Pill
  • 1999. ISPOR Annual International Meeting – Comparison of Quality of Life Scores between Menopausal Women and Age-Matched Peers
  • 1999. ISPOR Annual International Meeting – Implications of Menopausal Symptoms on Quality of Life

 

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