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    Clinical Outcome Assessments

    What are Clinical Outcome Assessments (COAs)? What do they measure?

    Learn more about COAs
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    PROQOLID™: the largest COA database

    7,000+ COAs described in details and accessible in this unique database

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    Mapi Research Trust provides turnkey solutions for your Clinical Outcome Assessments (COAs) strategies - including COA databases, targeted literature reviews, licensing.

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    Find out more about this step-by-step guidance for valid digitization of COAs

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    Author Collaboration

    Our team is dedicated to assisting authors in the daily management of their questionnaires and all derivatives, including translations and electronic versions

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    New whitepaper

    Digitizing COAs: A streamlined approach to approval

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    New whitepaper

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    About us

    Mapi Research Trust is a non-profit organization dedicated to improving patients’ quality of life by facilitating access to Clinical Outcome Assessments(COAs).

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    A global team of multi-disciplinary experts

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    Experience

    Collecting & Processing Patient Centered Outcomes information for more than two decades

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  4. Ophthalmology

Ophthalmology

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Articles

  • 2016. Holz FG et al. – Key drivers of visual acuity gains in neovascular age-related macular degeneration in real life: Findings from the AURA study
  • 2016. Holtz FG et al. – Determinants of visual acuity outcomes in eyes with neovascular AMD treated with anti-VEGF agents: An instrumental variable analysis of the AURA study
  • 2014. Arnould B et al. – Qualité de Vie. In: Glaucome primitif à angle ouvert
  • 2012. Guillemin I et al. – Appraisal of patient-reported outcome instruments available for randomized clinical trials in dry eye: Revisiting the standards
  • 2010. Nordmann JP et al. – Identification of noncompliant glaucoma patients using Bayesian networks and the Eye-Drop Satisfaction Questionnaire
  • 2010. Colin J et al. – Assessment of patient satisfaction with outcomes of and ophthalmic care for cataract surgery
  • 2010. Lévy P et al. – Development of a new subjective questionnaire: The Freedom from Glasses Value Scale (FGVS)
  • 2010. Berdeaux G et al. – Measuring benefits and patients’ satisfaction when glasses are not needed after cataract and presbyopia surgery: Scoring and psychometric validation of the Freedom from Glasses Value Scale (FGVS©)
  • 2010. Cochener B et al. – Spectacle independence and subjective satisfaction of ReSTOR multifocal intraocular lens after cataract or presbyopia surgery in two European countries
  • 2010. Regnault A et al. – Scoring and psychometric properties of the Eye-Drop Satisfaction Questionnaire (EDSQ), an instrument to assess satisfaction and compliance with glaucoma treatment
  • 2009. Cochener B et al. – Corrected and uncorrected near and distance vision with ReSTOR compared to monofocal intraocular lens implantation after cataract surgery: A pooled analysis
  • 2008. Baudouin C et al. – Severe impairment of health-related quality of life in patients suffering from ocular surface diseases
  • 2008. Bechetoille A et al. – Measurement of health-related quality of life with glaucoma: Validation of the Glau-QoL© 36-item questionnaire
  • 2008. Berdeaux G et al. – Patient-reported benefit of ReSTOR multi-focal intraocular lenses after cataract surgery: Results of principal component analysis on clinical trial data

Posters & Presentations

  • 2017. ARVO Annual Meeting – Understanding the impact of Stargardt disease on patients’ lives: Insights from patients and their parents based on qualitative research
  • 2017. ARVO Annual Meeting – Living with Usher’s syndrome Type 1: Development of a disease impact model from qualitative interviews with patients and their parents
  • 2015. ISPOR European Congress – Cost-Effectiveness Analysis of Intravitreal Aflibercept in Diabetic Macular Oedema in Sweden
  • 2011. ISPOR European Congress – Impact of Dry Eye on Everyday Life (Ideel) – Symptom Bother: Estimating Cut-off Scores for Dry Eye Severity Groups
  • 2010. ISPOR European Congress – Vision-Related Quality of Life Instruments (QOL) after Refractive Cataract Surgery
  • 2010. ISPOR Asia-Pacific Conference – Content and Psychometric Validity of the Eyelash Satisfaction Questionnaire (ESQ) in China
  • 2009. ISOQOL Annual Conference – Eye Surgery Patient Impact Questionnaire: Development of a Version for International Use
  • 2008. ISPOR European Congress – Scoring and Psychometric Properties of the Eye-Drop Satisfaction Questionnaire (EDSQ)
  • 2008. ISPOR European Congress – Scoring and Psychometric Validation of the Freedom from Glasses Value Scale (FGVS)
  • 2008. ISPOR European Congress – Identifying Compliant Glaucoma Patients Using the EDSQ, A Questionnaire Measuring Satisfation and Compliance of Glaucoma Treatment
  • 2008. ISPOR European Congress – Effectiveness of the Restor Multifocal Intraocular Lens (IOL) in Cataract and Presbyopia Surgeries in Two European Countries
  • 2008. ISPOR Annual International Meeting – Patients’ Perception of Life Free of Glasses after Cataract Surgery: Development of the Freedom from Glasses Value Scale (FGVS©)
  • 2006. ISPOR European Congress – Development of a Questionnaire Assessing Patient Satisfaction with Eye Drops in Ocular Hypertension and Glaucoma
  • 2006. ISPOR European Congress – Vision with RESTOR® versus Monofocal Intraocular Lenses (IOL) After Cataract Surgery: Results of a Pooled Analysis
  • 2006. ISPOR European Congress – Vision Benefit from Multi-Focal Intraocular Lens (IOL) After Cataract Surgery Estimated by Principal Components Analysis
  • 2005. ISPOR European Congress – Development and Validation of a Comprehensive Painful Symptom Checklist Allowing to Provide a Complete Description of Pain in Ophthalmic Diseases
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